Today was a rough one. Not rough in the sense that anything really bad happened… thank God, but just one of those days that tested Mom, the nurses, and everyone going back and forth all day long. It was BUSY. Let’s start with our easier child today… Colton. 😂 Colton is doing great! He is still hanging out at a PEEP of 9. They did add a few extra breaths, so at times he gets a little additional pressure, but overall he is handling everything really well. Possibly Thursday, we

It’s been a few days since our last update because we took some much-needed time this weekend to just enjoy being together as a family. 💙 Saturday morning was actually a pretty big step for our family… we got our family car! Three rows with plenty of room for the boys, all of their things, and eventually the additional nursing help we’ll have with us. It feels a little surreal to buy a vehicle specifically thinking about bringing our boys home, but we absolutely love it. Aft

Not much has truly changed this week, and honestly, sometimes that’s a good thing. We are still taking things day by day and letting the boys grow, rest, and continue moving forward at their own pace. We’re still working on Colton’s puffiness, in his face and head. At times it seems like it isn’t quite as tight, but he is still holding onto quite a bit of fluid. We’re going to continue working with surgery and a few other teams to see if there are any other options we can try