Aug 2nd
Weekend Update 💙💙 Another weekend in the books. Sometimes the best updates are the ones where there isn’t much to report. After everything these boys have been through, “stable” has become one of our favorite words. 💙 Colton Colton had a nice, steady weekend. There were no new problems, and he continues to do well on his trach and ventilator. He’s tolerating his feeds, taking up to 60 mL by bottle every other feeding, and continues to amaze us with how much he enjoys eatin
kylielehr
2 days ago
July 29th
Today felt like one of those days that we’ve prayed about for so long. Both of our boys are doing really, really well. Declan continues to amaze us. He’s still slowly weaning on his ventilator settings, and the conversations about trying to remove his breathing tube are becoming more real every day. If everything continues to go the way we hope, the team is looking toward sometime in the next week or so to attempt extubation. We won’t be sharing a specific date because things
kylielehr
6 days ago
July 27th- Happy 6 months boys!
Today, our boys are six months old. Six months. It doesn’t seem possible…. Emotional momma over here…. It’s hard to put into words what this day means. Six months ago, our lives changed forever. Six months ago, two tiny little boys entered the world far too soon and immediately began fighting for their lives. And today… they’re still fighting…. When I was pregnant, I only got to carry them for six months. I would have done anything to keep them safe inside me longer. Instead,
kylielehr
Jul 27



